Endometriosis Awareness Month- Navigating Diagnosis: Speaking to your Employer

“Remind yourself that YOU are not your diagnosis”

I have had symptoms of Endometriosis for the past 5 years and as of January 2025 I have officially been diagnosed with Endometriosis through a Laparoscopic Surgery.

Whilst waiting for a diagnosis it has been frustrating and painful to live with the daily symptoms of Endometriosis. Diagnosing endometriosis can be challenging, as its symptoms often mirror with other conditions like pelvic inflammatory disease (PID), irritable bowel syndrome (IBS), or ovarian cysts. Endometriosis is a chronic condition that requires personalized care. Early diagnosis and a combination of treatments can help manage symptoms and improve quality of life. If you suspect you may have endometriosis, it’s essential to speak with a healthcare provider who can guide you through the diagnostic and treatment process.

Informing your employer about your endometriosis diagnosis is a personal decision, but it can be important for your well-being, especially if your symptoms affect your ability to perform your job or if you may need accommodations for treatments or flare-ups. Here are some steps and tips for approaching this conversation:

Prepare What You Want to Share:

You don’t need to disclose all the details about your condition, but you may want to explain enough for your employer to understand why you might need flexibility or accommodations. Focus on:

• The nature of the condition: Briefly explain what endometriosis is and how it may affect your health, such as fatigue, pain, or difficulty concentrating – a lot of individuals do not know the full extent of the symptoms and how they can affect day to day life.
• The impact on work: If your symptoms interfere with work, such as needing time off for medical appointments, treatment, or flare-ups, mention this.
• Possible accommodations: If you need specific accommodations (like flexible hours, remote work options, or more frequent breaks), be ready to discuss these.

Offer Solutions:

If possible, come with ideas on how to manage the situation. Employers will appreciate proactive thinking. This shows that you are still dedicated to your work and are just looking for ways to balance your health and job.

While it may feel intimidating, being transparent with your employer about your endometriosis diagnosis can help you get the support you need. By approaching the conversation thoughtfully, you can maintain a good working relationship and ensure you’re supported as you manage your condition.

Knowing your worth:

Endometriosis can bring many difficulties, but your ability to cope with the condition and continue moving forward despite the challenges is a testament to your strength. Recognizing your resilience in the face of adversity is a powerful way to understand and honour your worth. You’re not defined by your diagnosis; you’re defined by how you face it.

• Recognize your ability to persevere: Even on tough days, the simple act of getting through the day is a victory.
• Celebrate small successes: Whether it’s a good day without significant pain, managing your responsibilities, or attending an important appointment, these are all accomplishments.
• Be Kind to yourself – being kind to yourself is the most important thing. Remind yourself that you are not your diagnosis.
• Allow yourself to rest – Sometimes your body needs rest, and that’s okay. Resting doesn’t mean you’re lazy or unproductive—it’s a form of self-care.
• Understand that some days are harder than others – everyday is a different day, give yourself time to recharge and rest and remember that it is okay to not be okay all the time.

You are worthy of love, respect, and care, regardless of your diagnosis. Navigating endometriosis requires strength, but that doesn’t mean you have to sacrifice your well-being or self-worth in the process. Recognising your value is about embracing your strengths, acknowledging your struggles, and allowing yourself to take up space in the world as you are.