Life After Diagnosis: Treatment, Surgery & Next Steps

Receiving a diagnosis of endometriosis can be both a relief and an overwhelming experience. After years of unexplained pain, fatigue, and other debilitating symptoms, finally having a name for what’s happening inside your body can feel validating. But what comes next? Managing endometriosis is different for every single woman, and navigating treatment options, surgery, and lifestyle changes is a scary thing! I remember how bewildered I felt after leaving Dr Mann my consultant thinking what is this attacking me and growing in my body, with 1000 unanswered questions. 

There is no definitive cure for Endometriosis, but several treatment options can help manage symptoms: 

1. Hormonal Therapy – Birth control pills, hormonal IUDs, and progestin therapies can help slow the growth of endometrial-like tissue and reduce pain.
2. Pain Management – NSAIDs (such as ibuprofen/paracetamol) are often the first line of defence. Some individuals may require stronger prescription pain relief.
3. Lifestyle Changes – Diet, exercise, and stress management can play a role in reducing inflammation and improving overall well-being.
4. Complementary Therapies – Acupuncture, pelvic floor therapy, and certain supplements (such as omega-3s and magnesium).

The Role of Surgery

For those whose symptoms persist, surgery may be an option – I so far have had three operations throughout my life (laparoscopies), and they have all helped me immensely. These are a few surgeries you can have:

• Laparoscopy – A minimally invasive procedure that allows surgeons to remove or burn away endometrial-like tissue. You can be in and out in a day.
• Hysterectomy – In severe cases, some may opt for hysterectomy (removal of the uterus), though this is usually considered a last resort.
• Excision Surgery – Unlike ablation, excision surgery involves cutting out the endometrial-like tissue at its root, offering better long-term relief.

Surgery is not a guaranteed fix, and recurrence rates vary. I have a repeat operation every six years or so. Post-surgical care includes hormonal management and physical therapy, and you are normal back on your feet all being week in 6-8 weeks. But like I said earlier every woman is different so just listen to your body.

What’s Next? Navigating Life with Endometriosis

 A diagnosis is just the beginning. Here’s how to move forward and the tips I have, having lived with endometriosis for over 20 years:

• Advocate for Yourself – Stay informed and push for the best care possible. Endometriosis is often misunderstood, and not all doctors are well-versed in the latest treatments – keep pushing! 
• Seek Support – Join online or in-person support groups. Connecting with others who understand your experience can be life changing. I joined several Facebook groups after my original diagnosis, and this really helped educate me and made me not feel alone.
• Monitor Your Symptoms – Keep a journal of pain levels, menstrual cycles, and other symptoms. This can help guide treatment decisions for now and in the future. I noticed patterns which is really important.
• Consider Fertility Options – If family planning is a concern (which unfortunately it can be for many with endometriosis), consult a fertility specialist early on. 

Living with endometriosis can feel isolating. It’s a condition that many don’t fully understand, and it often takes years to receive a diagnosis – for me personally it was nine years!! YOU ARE NOT ALONE. Many people with endometriosis find ways to manage their symptoms and live fulfilling lives. Some days will be harder than others, but with the right support system and treatment plan, relief is possible. The key is to listen to your body, be kind to yourself, and remember that your pain is real and valid. Your journey with endometriosis may not be easy, but you are more than your diagnosis—you are resilient, strong, and worthy.

Raising awareness of endometriosis is crucial, not just for those seeking a diagnosis but also within workplaces where understanding and support can make a huge difference. Many individuals with endometriosis struggle with chronic pain, fatigue, and the unpredictability of symptoms, which can impact their ability to work. Employers can play a vital role by fostering open conversations, offering flexible working arrangements, and implementing policies that support those with chronic conditions. Endometriosis Awareness Month is an opportunity to educate colleagues, challenge stigma, and advocate for workplace environments where those affected feel seen, supported, and empowered to thrive.